Tuesday, 28 August 2012

Summer's Ending....

Well, i have had a great Summer!! Only one hospital admission, which was planned and thats it!! I have done loads of great things and spent lots of time with my family.
I have been to Essex and met some of the people from TOWIE which was fun!
 Me and Amy Childs :)
 Harry, Me and my Sister
My Sister and Amy Childs

All of the people from TOWIE were really nice and happy to chat and have photos! I have also been to Thorpe Park, went on nearly all of the rides and got a massive bean bag dougnut - Thanks to Adam Haha! I have been swimming, to a farm, Longleate, BBQ's and been busy most days which is so tiring but well worth it! I went to see JLS yesterday which was Soooo Good!!! I loved it!! and Little Mix, cover drive and i am titch were good too! Would love to go again if i get the chance! AMAZING! :D

I'm back to college next week! :( i will be sad to go back but it will also be good to get back to my bedroom where i can be more indepenant. At home - my house is not designed for wheelchair users at all and i cant do ANYTHING on my own which i hate. My joins hurt so much as it really hard for my mum/dad/carers to transfer from my chair to stairlift and all the other transfers i have to do to get upstiars. Luckly i have hoists in my room and in the living room now which helps a lot :) Im starting A Level Biology and carrying on with my current alevels this year so hopefully my lungs will behave a bit so i can get A's again this year!

I have an appointment at the Brompton in a few weeks so will update on that, will update about starting back at college and who is new to my boarding house and yea... lol

Chloe :)

Tuesday, 14 August 2012

Summer Hols!

Hello Everyone!
Well this is my first Post! Its the summer holidays and im LOVING not doing any work haha!! I have been out of hospital for my record length of time! - 4 MONTHS!! and im still feeling ok! Got a bit more chesty as i have not had any IV's for soooo long!!! I usually have IV's at least every 3 months if not less! I have just started my month on TOBI so that should hopefully keep the pseudomonas and other nasty's undercontroll! I have been out and about a lot!! I even fed a giraffe called Henry yesterday lol! Oh and i have been on my 'Wish Trip' to Disneyland Paris! it was soo good and all of my family enjoyed it! They even have rides you can just drive your wheelchair onto, its sooo good!
Here is a Link to my video with the Pikks

I have also had a few tests at RBH, lung function, sleep study and fitness to fly. My lung function was 26%, im a bit dissapointed as i hoped the IV's and how well i have been would have meant it was higher but i know it will not get higher than that now. My blood gass showed low oxygen levels (suprise suprise) so thats that really. BUT and im allowed to fly!! whoooo but have to go up by 2 litres on my oxygen which is fine, i'll just have to wear a mask as it would hurt my nose!!
Just a bit annoyed that im not actually going to fly anywhere now :( my insurence was WAY to high

Im off to Essex and Thorpe Park next week so that should be fun!

Bye For Now :)